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Seriously, God?

July 26, 2011

I am beginning to really hate the phone. Lately it never seems to be the call I want to get. This time it was the rehab saying Queenie was struggling again. Here’s a shocker – she has a UTI plus hyperapnia again PLUS pneumonia. As Peepette would say, she’s got the Trifecta of Crap. Seriously, God? Enough already …..

Luckily this time we got a doctor who is neither condescending or snooty. Even better he knows MS a bit which is more than the last 2 hospital stays. He seems to know what he’s doing & has a plan of action that includes antibiotics, respiratory therapy and a med review.

We are tired…emergency rooms are no place to get rest. Hopefully soon we can get Queenie into a bed & a bit more comfortable and start this healing business.

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3 Comments leave one →
  1. July 27, 2011 12:13 PM

    Frustrating is an understatement from a caregiver’s perspective. Just always remember behind all the “she HAS” is the – she IS.

    Caregivingly Yours, Patrick

  2. July 26, 2011 11:30 PM

    This is yet another challenge, Sandie, that’s the way I keep thinking of it. The toughest part of all of this is explaining to people who didn’t know Queenie before this exacerbation just what kind of woman she is – that her personality is larger than life and that if they will just wait a wee bit, they will find the real person that’s in there somewhere. Right now her personality has changed a lot because of the UTIs (among other things) and that is frightening because we know that SHE is still in there somewhere. Every once in a while she flips me the bird and it gives me hope that one day the Queenie we all know & love will be back – and boy will she be pissed that we let her go through rehab without her curling iron, makeup & sequined US Flag tshirts!

  3. Sandie DelVecchio permalink
    July 26, 2011 11:21 PM

    Oh, Bina, I’m so sorry. But she’s still here and that’s the the whole ball of wax really. She’s still here and that’s the best part. It’s so tiring, and wears everyone out when you are a caretaker, all the decisions, all the paperwork, so much to learn. You and peepette keep on chugging along, little victories each day. I think about you all the time. Queenie was an amazing personality before MS, and still is, and that gets her through a lot now i think. You don’t meet Queenie and not like her, she has a lot of people who smile when they think of her.
    Sandie

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