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Updates & Good News

July 19, 2011

Finally an update!

When last we left Queenie, she was still in the hospital dealing with a UTI and what we now know was either another exacerbation or a continuation of the first one. The ACUTE rehab had sent her there by ambulance when she was unresponsive but then when she improved enough to be ready for discharge, they refused to re-admit her. To make a long story short, they said she hadn’t made enough “functional gain” while there – she’d progressed, true, but not regained enough function for them to continue working with her. They felt she’d be better off in a SUB acute rehab and that a slower paced rehab would be better for her in the long run. Mind you, all of this was coming from administrators & medical directors. None of them had actually MET her. Everyone who HAD met her and who worked with her all felt that acute rehab was EXACTLY where she belonged, from her case manager to her neurologist to everyone in between.

What this tells us is that this had very little to do with Queenie’s medical condition and more to do with her insurance. You see, Queenie still has one very important thing and that is private health insurance. Unfortunately, this insurance provides for only 60 days of acute rehab benefit and Queenie had already used up 46 of those days. The Admissions Director (of course) denied that it had anything to do with insurance at all and had everything to do with her lack of progress, to which I called bullshit. If insurance had nothing to do with it why were all of her belongings tagged with her name, date of birth and insurance type? Seriously, did they think we’re idiots?

We got worn down …the last conversation I had with the aforementioned director ended with me saying in my best “voice” – ‘Thanks EVER so much’ and hanging up on her in mid-sentence. Peepette and I talked, I had a drink & then we talked to Queenie. We all decided it would be best to find her something closer to home – get her back in our county where we can be there in a flash and can closer monitor things. It took almost a week but we did get her semi-home – she’s now in a sub acute rehab center (AKA Skilled Nursing Facility) less than 10 miles from home and about 5 miles from my office – I can see her on my lunch hour!

She’s doing MUCH better …she had another dose of Cytoxan before she left the hospital (I’ll post about that separately) and it seemed to have done some good this time. We’re keeping our fingers crossed – things are looking up and we are feeling more positive than we had before. She still has a lot of challenges to overcome but for the first time since May we are seeing a little bit of light at the end of the MS tunnel.


4 Comments leave one →
  1. July 19, 2011 9:34 PM

    Took the liberty of adding your blog to my caregiver blog links and on the topic of UTI’s they used to plague my wife until with much lobbying and research we got an OBGYN to prescribe Macrobid as a prophylactic. She has only had one UTI in over 10 years since.

    Caregivingly Yours, Patrick

    • July 19, 2011 9:37 PM

      What is with the weird permalink generator? “caregivinglyyoursick” from caregivingly yours? Something real wrong with Word Press, kind of rude IMHO.

      Caregivingly Yours, Patrick

      • July 19, 2011 9:44 PM

        I’ve been really struggling with WordPress from the beginning – it does bizarre things that I can’t figure out. I’ve been tossing around the idea of moving back to Blogger because of it. Sorry about that!

    • July 19, 2011 9:38 PM

      Thanks so much for the blog add – I’m doing the same for yours 🙂

      The UTIs are just doing a number on her – thanks very much for the info on Macrobid – I’m going to have a chat with a doc in the morning about it!!

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