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JOURNAL ENTRY: Day 36 through 39: June 15 – June 18 , 2011

June 14, 2011

Post Cytoxan Day 6 through 9

What a week it’s been! We have been busy working with insurance companies, social workers and case managers this week, in addition to all the other stuff that regular life brings. It’s been an adventure, that’s for sure.

So, how’s Queenie? She’s doing …. her leg pain has decreased down to normal levels, thank God. Still no idea on what the cause of it was but CIPN has been ruled out for now. It’s possible that the Cytoxan may be interfering with her Baclofen and resulting spasticity may have caused it. All we know is that now it’s back to semi normal & Queenie’s been able to get back to the job of getting better – this is a job she is taking VERY seriously.

For those that don’t know her, she’s a very stubborn determined HARD HEADED woman (quite a bit like our Father, which is something she hates to admit. She’s more LIKE him than she is UNLIKE him!)  She’s the one person in rehab who is asking for more things to do, who goes back to her room & does more exercises & practices as much as she can. That whole thing with being able to do her own hair? Totally got that far by doing an exercise the therapist showed her once. She doesn’t want to hear that she can’t do something either. I was a hardcore “LOST” watcher and was reminded of Queenie pretty much every time John Locke said his famous phrase. It was this determination that kept her working full time as long as she did.

I saw her yesterday for what started as a good day. We laughed & carried on a little bit, but she’d complained a little of being itchy. She had red spots on her thighs that the doc thought might have been a reaction to soap – not a big deal so we kept on hanging out (she FINALLY got her manicure – I even gave her a hand & arm massage which she loved – it sounded an awful lot like a porn movie in her room!!) and as we were finishing up, the itchiness started again, this time on her arms. Literally within minutes she was covered in hives. Big ugly ITCHY hives.

Seriously?? Fucking hives? Has this woman not had everything there is possible to have? Apparently not. Here you go, Queenie …. on top of pain, immobility, bad vision, bad speech & the indignity of having others take care of your every need, you’re now going to be ONE GIANT ITCH THAT YOU CAN’T SCRATCH. It would be hysterically funny if it weren’t so frustrating.Thankfully steroid cream (an entire tube thank you very much) and some Benadryl later, Queenie got through it. I was sorely tempted to yell at God last night but I restrained myself … we could be looking at plagues of locusts next if I don’t watch my mouth.

2 Comments leave one →
  1. Sandie DelVecchio permalink
    June 19, 2011 2:20 PM

    Thank God for her hard-headedness. Spoken as someone who isn’t on the receiving end of it! She is so lucky to have you all. Please tell her. Again I’m thinking of her.

    • June 19, 2011 3:48 PM

      Lucky you …yesterday she was bound & determined for her nails to be done JUST SO. I got to be on the receiving end of that one. Still, a small price to pay for her to be happy. 🙂

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